Wednesday, June 3, 2009

New Arrivals from Telegraph


Got some fun stuff in from Telegraph Brewing in Santa Barbara today.

Stock Porter: A blend of porters with part aged in zinfandel barrels

Reserve Wheat Ale: Made in the style of a Berliner Weisse, this is a nice wheat wild ale with lemon verbena added

California Ale: Back in stock

Golden Wheat Ale: Back in stock

Drink up Scallywags, Yarh



Nate (your resident pirate beer enthusiast)

taking care of my body in 2009: part 6 (or you have to be ready)



First of all, let's review the goals I set for myself last month:


1-Walk VIGOROUSLY for an average of one hour, five times per week (300 minutes a week).

This is a good place to start, since I did well, accomplishing this goal and exceeding it. Next month, I may think about doing something to ratchet up the intensity.

For now, I am also riding my bike around town. As a result, I have a sore rear end. I am sure this will get better.

2- Do either 10 minutes (at least) of strength training or yoga with the Wii Fit or abdominal exercises every day (chemo recovery days excluded).

I did this only 4 times. I also hurt my back this month, pulling my suitcase down from a shelf on the train. I was in a hurry and not paying attention. It was a bit of a wake-up call about the need to improve my core strength.

To that end, I saw my physiotherapist again on Monday. She surprised me by saying that, when it comes to my back, the stiffness in my hips is a bigger problem (she actually said, only half-joking that she is surprised that I can walk). She said it she hasn't seen anyone as stiff as I am in a long time.

So, I now have some stretches that I need to do regularly in addition to the core strengthening.

3-Go to yoga once every week.

I didn't go at all in May. And despite the fact that my physio says that she sees "a lot of yoga in my future" I think that I may not go again until the fall.

It's becoming harder to find a class I can attend regularly (and this will only get worse over the summer, with fewer classes and the kids around more). And I don't really want to go back to the class I have attended the most regularly (the timing is good but the teacher, always more impatient than most, actually yelled and swatted another student the last time we went. It was a bit of a turnoff).

Besides, I feel that I have a lot on my fitness plate right now.

4- Take my vitamin D and calcium supplements daily.

I didn't do this in May either but I am 2 for 3 in June. And going to take them with lunch, I promise.

Now for the big change. I have decided to start doing the Weight Watchers thing again. It's a program that has worked for me before (I lost almost 50 lbs after D. was born) and I feel ready to do it again.

I know I said this last year but this time I have a support group, comprised of two good friends who also would like to get down to their pre-breast cancer diagnosis weight. For four weeks now, we have been weighing in every Monday. They are both doing WW and I have just been reporting on exercise and my quest to eat more veggies.

Then, on the weekend, I admitted to myself that I have the best success when I write everything down that I put in my mouth. And I also realized that I am ready to do this. It wouldn't have done me any good to start earlier in the year. I am ready now. And it feels like the right thing to do.

I did check with my doctor. The conversation went like this:

Me: "I am thinking of making some changes to try and take off some of the weight I have been putting on since my diagnosis..."

Dr.: "Have you considered Weight Watchers?"

So, clearly I have the green light to do this now. And I don't have the discipline to do this any other way than really slowly.

This process will also help me reach these goals:

5-Cook dinner at least once a week.

Easier to count points if I know what went into dinner. Easier to stretch those points out if I prepare lower points options for all of us.

6-Cut down on refined sugar.

I really don't want to waste points on empty calories.

7-Eat seven servings of fruit and veggies a day.

Conversely, filling up on fruit and veggies makes those points go further.

As you can see, I have all the zeal of someone on the third day of a diet. And I'm hungry.

I need to make vegetable soup today.

What goals did you set for yourself this year? How are you doing?




Tuesday, June 2, 2009

The Tyranny of Positive Thinking

I am truly passionate about acknowledging the emotional aspects of cancer. I was privileged twice now to speak with Dr. Jimmie Holland, a hero of mine. I read her book "The Human side of Cancer: Living With Hope,Coping with Uncertainty" shortly after I was diagnosed. Who would have believed that years later, via my involvement with the American Association for Cancer Research's Scientist Survivor Program, I would actually get the chance to hear some of her presentations, to meet her and to have conversations with her? She is an amazing woman and a wonderful advocate for cancer patients and the emotional struggles that go along with a diagnosis of cancer.

I loved the chapter of her book, The Tyranny of Positive Thinking, which is available on-line. In an excerpt from her book, she writes:

It is common for people who have survived cancer to look back on the experience and attribute their survival to their positive thinking, discounting the fact that they also sought medical help early and had the best-known treatment for their cancer. This belief not only provides an explanation for their cure from cancer, but also buffers fears that it will come back. "If I licked it once with this attitude, then I can keep it from coming back the same way." This belief is reassuring and provides a way of coping with the normal fears people have about the cancer returning. A good attitude surely leads to the best and most logical approach to getting cancer successfully treated. But I have also known people with positive attitudes, who sought early diagnosis and treatment, and who simply weren't as fortunate. I have seen patients who had no belief in the mind-body connection and who discounted the importance of their attitude completely, yet they survived.

Ernie, a lawyer who was absolutely negative about every aspect of his diagnosis and treatment of lymphoma, was convinced from Day 1 that he would not survive. He explained that he usually saw the dark side of things and the glass as half-empty. Although he stuck faithfully to his chemotherapy treatment, no amount of encouragement or "good" results on his medical tests could persuade him he was doing well. He would say over and over again, "Dr. Holland, I'm not going to make it." It's now been eighteen years since his treatment; he's been cancer free ever since. He's still going strong and is still as much a pessimist as ever. Ernie is an example of how attitude is not the whole story in surviving cancer.

My view is that if a positive attitude comes naturally to you, fine. Some people are optimistic, confident, and outgoing in virtually every situation. Your attitude toward illness reflects your attitude toward life in general and your handling of day-to-day stresses and hassles. There is no way you will see that the glass is half-empty if you are certain that it is half-full. And the converse is true: If you see the glass as half-empty, I can't convince you that it is half-full. It is not easy to change people's ingrained attitudes and patterns of coping.

It's dangerous to generalize about attitudes and their impact on cancer without more information. The present-day tyranny of positive thinking sometimes victimizes people. If thinking positively works for you, well and good. If it doesn't, use the coping style that's natural to you and has worked in the past. (I discuss different modes of coping in Chapter 6.) Trying to get you to "put on a happy face," to pretend you are feeling confident when in fact you are feeling tremendously fearful and upset, can have a downside. By feigning confidence and ease about your illness and its treatment, you may cut off help and support from others. You may also be hiding anxious and depressed feelings that could be alleviated if you told your doctor how you really feel. Also, this tyranny of positive thinking can inhibit you from getting the help you may need out of fear of disappointing your loved ones or admitting to a personality some people think is fatal. If you are surrounded by "the positive attitude police'" ask your doctor, clergy, or therapist to call them off, letting them know that this is an important time for you to be honest about your feelings so that you can get all the help you need.


As a nurse I think sometimes of other disease I see, diseases with known causes and known cures. I was hospitalized once years ago with a rather severe case of pneumococcal pneumonia. We knew the cause, a bacteria, and the treatment, antibiotics. Because the cause and cure were known, there was no expectation for me to "think positive" to aid my recovery. The attitude was that I would probably feel badly with my high temp and lung congestion until the antibiotic took effect. I wasn't to blame for my illness, a bacteria caused it, and I wasn't expected to defeat it with a positive outlook and mind body connections...there was medication to solve my problem.

Cancer is different because the causes and cures are more illusive.

Many cancer patients confide to me that they resent those around them who insist they "think positive". They are exhausted by the "positive attitude police". They are tired of trying to put on a positive front around friends and family. They want to feel free to talk about how they sometimes feel...anxious, depressed and worried, but because they are expected to always be "positive", they receive no support in dealing with some of the normal negative emotions they have. They feel very alone. I was blessed to have the support of my best friend Rose, who was always willing to hear me out when I felt angry or depressed, who never once suggested that I needed to "think positive" or have a "good attitude" to defeat my cancer.

I also know of cancer patients who buy into their "dis-ease" causing their disease, their cancer...who buy into feeling personally responsible for their diagnosis, personally responsible for curing their disease. It's a terrible burden that can lead to guilt and helplessness, both which can have a negative impact on quality of life....and in the end maybe even survival.

Cancer is tough, and sometimes negative emotions are normal. It's okay to not always feel positive and upbeat. We need to allow ourselves that. We need to be able and allowed to seek help and support when we feel troubled.

Diagnose the Bitch!


Cancer Bitch looked down while showering today and saw two red bumps on her left leg, about six inches above her ankle. One is the size of a dime and the other about half the size. Both have irregular borders and itch slightly. Of course she had to immediately go to the Internet and found out that the bumps are caused by: diabetes, spider bites, tick bites, shingles, actinic keratosis, squamous cell carcinoma, bed bug bites, allergy, ageing, or else they're just one of those things. At the same time she was itching itching all over because of her polycythemia vera and got panicky because she'd taken Atarax (generic) an hour before and that was supposed to stop the itching and it didn't and if the Atarax is pooping out, then what is she going to do? She can't take Paxil, and benedryl isn't strong enough, and will she be itching like this forever and ever, and so uncomfortable and distracted because of it and what kind of life can you live like that? and so on and so forth. She called the hematologist, who wasn't available, and talked to her assistant, who said the bumps have nothing to do with her blood disease, and are not a sign of a blood clot. She hadn't thought so but had been a'feared anyway. He said she could try taking and he added that he had other patients with uncontrolled itching and he was sympathetic, and besides, she had an appointment in a week.

How was Cancer Bitch supposed to wait a WEEK when she was itching itching every single moment?

He also said to take Atarax every six hours. CB has been taking it when symptoms arose--sometimes, after four hours, sometimes after seven or eight hours. So she will take it around the clock.

The itching calmed down and the Bitch calmed down and went about her day. And was amused to find, via Google, that lots of dogs have raised red bumps on themselves. It's sad for the dogs, but shows how mysterious and universal these red bumps are.
CB had lunch with her friend D, who told her that a doctor said recently, referring to an eye problem: If it's bad, it will get worse. Which means, if it's not a bad or serious condition, it will resolve itself. Lunch was at Ben's Noodles & Rice, where you can get a lunch special (soup, appetizer, entree) for pretty cheap--$15 something for two, counting tax but not tip.

Cancer Bitch made an appointment with her internist for Thursday. (She needs to get an EKG at the doctor's anyway, to make sure her heart can undergo anesthesia before her fibroidectomy next week.) Cancer Bitch suspects that the hematologist and her assistant think that she consults with them about things she should be asking her internist; well, it's true, she does. The hematologists are easier to get on the phone and the doctor answers email.

So, dear reader, with a day and a half before the doctor appointment, armed with the description of the red spots, please make your diagnosis in the Comments section.



Out, damned spot! Out, I say!

i have excuses (no, the dog didn't eat my blog posts)


I'm back.


I didn't intend to keep Will and Billy and the boys at the top of the page for so long. I keep meaning to post but I never seem to get around to it. I wanted to assure those who have expressed concern that all is well.

It's time to re-commit to regular updates and to begin, please let me explain my absence:

The last round of chemo was kind of hard. I'm not sure if I was hit with an additional bug but I experienced some really gruesome side effects (I'll let you use your imagination), especially last Friday, when I should have started to feel better.

The truth is, that I am taking longer to recover every round, these days. My oncologist has suggested that I skip a treatment this summer. I plan on taking July off so I can go to BlogHer (Did I mention that I got in? I was so disappointed when I came back from Florida to find that the conference had sold out. I can't really afford this but when I learned that there was a space for me, I hesitated for only a couple of hours before taking out the credit card. After all, my book will be there, I want to be there with it!)

I'm going to ask my doc if I can take August off, as well. It can't hurt to ask, right?

When I have felt well, I have been running around a fair bit. I have had a bunch of appointments (among other things, I have returned to physio and lymphatic massage, after taking a long break), errands and other commitments.

Last week end, for example, my spouse and I took D. to the Cumberland Heritage and Power Festival. There were so many cool things there, a steam powered rock crusher, water-powered toys and little tiny steam trains on which you could ride. I wish I had brought my camera. The photos would have made a great blog post.

I blame Twitter. I find sometimes that I have begun to compose my thoughts in 140 characters. For example, I tweeted about my brain MRI results but I see that I didn't write about them here (I think this is a common problem. I remember Average Jane citing Twitter as an excuse for not blogging). They were great results, by the way with absolutely nothing suspicious in evidence, or as I reported to my spouse, "There is nothing there."

I have had BSG to watch knitting to do.

Promoting my book, while fun, has left me kind of uninspired. But I am getting past that. How many more times can I say, "Please buy my book?" or "Don't forget about the Toronto launch on June 11?"

The truth is I haven't been doing much writing of any kind lately. And I miss it. I just seem to have fallen out of the habit.

But the only way to make something a habit is to do it.

So here I am.


Monday, June 1, 2009

Post-gardening pains

The garden looks terrific, but I woke up this morning so stiff in the hips I could scarcely get out of bed. Vicodin helped, but I must really be out of shape to be so sore after only three hours on my knees. Today I swore off any more gardening and hope to be able to do some small tasks later this week. The sun keeps on shining, amazing for usually rainy Seattle! And of course the ironing awaits...

I went to Costco with L and watched her pile a cart high with everything under the sun. My own purchases were more modest -- olive oil, maple syrup, coffee, lox, some Copper River sockeye salmon and a new rug for the front door. I also found a teak shower seat marked "last one" and at an extraordinarily reasonable price. Someone must have returned it.

Everyone should have at least one Costco treat per visit!

Taking, Losing, Making


There are two empty houses on our block and one of them has been abandoned for 39 years, according to neighborhood lore. We want to dig out some of the plants and transfer them to our little front yard. I think it would be permissible to take from the very abandoned house. We think those plants with long thin leaves are some kind of lily but we have to wait to make sure. The other house has a boarded-up door, permanent scaffolding and a few nice white irises. We saw a woman working in the yard there last summer. She wasn't friendly. She refuses to sell, a neighbor told us, and this was before the market collapsed.


When I worked at AstroWorld amusement park, some of the time I helped the silhouette cutters. We all wore old-fashioned costumes because we were houses in the Old Towne Main Street or whatever (since razed). One silhouette cutter had panache and style and beauty but her silhouettes didn't look much like the kid (which the model usually was). She would make all kinds of bows and flourishes to gussy-up the profiles. She was such a dynamo that she could convince the parents that yes, this looked exactly like her child, don't you see? Kinda like the Emperor's New Clothes. The paper was folded so that each cutter made two silhouettes at once. If the people didn't buy the second one, we threw it away. (Which frustrated the parents, because they'd argue, Why isn't it free if you're just going to throw it away?) I would sweep up all the paper and occasionally I would take the extra silhouettes home and store them in my high school yearbook for use at a later time, which has not yet arrived.

The other cutters were a couple of art teachers from a small Texas town. They had no panache, just more precision in cutting profiles with special scissors. At dusk they would walk through the park making cuttings (guess it was in their blood) of plants that they liked. I thought it was stealing but you could argue otherwise. I suppose. Their silhouettes were more accurate and without the Little Lord Fauntleroy collars.

Last autumn our friends' son died and the mother is not wearing white or pastels, probably until the anniversary of his death. She writes letters to him. The father is thin and strained. She said to me, Do you have hope? and I said yes, and then I thought of Pandora's box, how after all the evil escaped, she managed to shut the cover before hopelessness was able to escape. Let us ignore for now the misogynist portrayal of Pandora, the first mortal woman, in this myth (curious, willful, girlish). Or maybe she shouldn't. One teller of the story suggests that she may have been a goddess originally, her immortality taken from her with the frequent retelling.

Sunday at Trader Joe's I saw two beautiful shopping lists, both held by women who were in the midst of referring to them. The writing was even and well-shaped, and both lists were the essence of lists, items printed in a column, one object pers line. I collect grocery lists but it is part of my ethic or personality (which is sneaky) not to ask for them. Enough with this Davy Rothbart, who founded FOUND, a magazine of found notes. I started collecting in the early 1990s or before. (And I have proof!! See my essay in Crain's Chicago Business, Sept. 28, 1992, about moving. I wonder if I should throw away or keep files such as the notes from the 1988 interview with Rich Melman; my collection of other people's discarded shopping and to-do lists, found on the streets over the last several years....) My idea was to hand them out in creative writing classes and have students create characters based on them. I've never done that. And someone else bested me: Hillary Carlip, a list collector since the age of 15, dressed up as the the characters she imagined behind each list, and got a book out of it all, A La Cart: The Secret Lives of Grocery Shoppers.

And FOUND is a book and a play off-Broadway and Rothbart brings his finds to This American Life, and Cancer Bitch has three books, but they are published by university presses, and she has no play off- or on Broadway and she used to hang out with Ira Glass (the first person she knew to put tomatoes in a stir fry) but that was many many years ago. Cancer Bitch has not started a national movement. One could say she is too inward, does not spread the wealth, as Rothbart does, with his "operatives" all over the US finding papers and sending them to him to publish. Cancer Bitch learned to use sesame oil from Gish Jen in graduate school, and you've heard of Gish, not to mention Ethan Canin and Dan Woodrell (no links to these people; you can find them yourself), with whom she also went to grad school, and she is feeling tres peevish (and doesn't know how to insert accents over letters) and keeps thinking of the essay Roy Blount, Jr. wrote the year that the MacArthur Foundation started designating (and paying) geniuses. I want a goddamned genius grant, he wrote. MacArthur fellow Robert Penn Warren is a great writer, but after all, what does he need to be designated a genius for? He's got a poem in every goddamned magazine you pick up.

There is some kind of lost web site where people write about objects they've lost. It is somewhere, way out in cyberspace, beyond sites about the TV show, and maybe by writing about the thing and posting a photograph, you can feel a little thump of satisfaction or compensation, the way you do when you wake up from a dream in which you've found that item you lost in the real world, and haven't yet realized that the dream was a dream.

And Cancer Bitch forgot that last week she started making art with her lists, sewing them onto satin, and while she was thus occupied she felt engaged and intense and satisfied, ye olde feeling that's been called many things over the centuries by people we've forgotten, and is now known in our century by the term that Mihaly Csikszentmihaly calls flow.